Navigating the new world of the National Disability Insurance Scheme (NDIS) can be a tricky thing! It is a new way of getting supports and works on the premise of a ‘Person Centred Care’ model. The idea of person-centred care is to allow more choice and control for each person with disability. It works on … Read more
Today is World Scleroderma Day, and on this day of June 29 1940, a talented Swiss-German Artist Paul Klee died of Scleroderma. Klee was diagnosed with Scleroderma in 1936, and with rapid advancement, sadly diffuse systemic sclerosis took away his last breath and his life. Klee’s symptoms started with fatigue, a skin rash, shortness … Read more
As a young girl, living with Scleroderma presented many challenges in life. Diagnosed at age 11, with the onset appearing more than 2 years earlier, I was barely at an age to understand puberty let alone Scleroderma. All sorts of strange things were going on in my body; hard, thick white patches of skin, tightening … Read more