Hard word – hard disease

Painting by Paul Klee

Today is World Scleroderma Day, and on this day of June 29 1940, a talented Swiss-German Artist Paul Klee died of Scleroderma. Klee was diagnosed with Scleroderma in 1936, and with rapid advancement, sadly diffuse systemic sclerosis took away his last breath and his life.   Klee’s symptoms started with fatigue, a skin rash, shortness … Read more

A young journey with Scleroderma

Amanda age 14 at the swimming pool

As a young girl, living with Scleroderma presented many challenges in life. Diagnosed at age 11, with the onset appearing more than 2 years earlier, I was barely at an age to understand puberty let alone Scleroderma. All sorts of strange things were going on in my body; hard, thick white patches of skin, tightening … Read more